Page 1 - Ken Muller' Experience
P. 1

Presentation by Kenneth Muller

          OOSO Quarterly meeting, Churchill Hospital, Saturday 11  June, 2016
          Presentation by Kenneth Muller, Former Upper GI Patient


         Kenneth Muller aged 65 and married to Sheila Muller. We are both
         retired and live in Marlow, Buckinghamshire. We have two adult
         daughters and two teenage grandchildren.
         I had an oesophagectomy in February 2015.

          Past health background
         During the last 15 years, I had become increasingly overweight and
         until 2011, when I retired, my lifestyle was not particularly healthy,
         especially in diet and irregular exercise. Before my diagnosis, I had
         reached almost 16 stones in weight. I had only had two previous
         occasions of being admitted to hospital for surgery.

             •   2006 A hip resurfacing procedure.
             •   2009 A broken tibia and fibula involving two successive

          Diagnosis                                             Care and Support

         During August 2014, I became increasingly easily fatigued.   Being referred to the highly modern Cancer and
         In early September 2014, after a routine blood test, I was   Haematology Centre at the Churchill Hospital,
         found to be extremely anaemic. I was prescribed a strong   immediately after formal confirmation of my diagnosis,
         course of iron tablets and referred to a colon cancer   has proved to be, literally, a life-saver, both for myself and
         consultant for investigation. Following a dual endoscopy   for Sheila. From the first time we met Anne Phillips and
         and colonoscopy at Stoke Mandeville hospital, I was    Anita Joyce, the Advanced Nurse Practitioners, and Bruno
         diagnosed as having a cancerous tumour in my           Sgromo, my consultant, we realized that we could not be
         oesophagus. Initially, it was viewed as, possibly, being too   in any better or in any more reassuring hands. Despite
         close to my aorta for surgery. Fortunately, several    several weeks of nerve racking uncertainty, as to whether
         subsequent exploratory procedures confirmed that       I was only going to receive palliative care or, more
         surgery could be possible, but only after a combined   positively, to be prescribed a suitable course of pre-
         course of chemotherapy and radiotherapy, comprising 5 x   operative treatment, the Churchill team ensured that we
         Monday sessions of chemotherapy and 25 x separate daily   both received a combination of highly positive ongoing
         sessions, Monday to Friday of radiotherapy, throughout   encouragement alongside a regularly delivered candid
         December and into the first week of January 2015. On the   assessment of the varying challenges ahead, dependent
         17th February, I underwent a 12-hour operation at the   upon which eventual prognosis would be finally
         Churchill Hospital, followed by 11 days of recuperation.     confirmed.
         There are three topics that I would like to explore:     The regular phone contact with Anita Joyce, always aimed
          • Care and support                                    at both myself and Sheila, covered a most critical phase of
                                                                time, prior to us discovering the eventual prognosis. It
          • The biggest challenge
                                                                enabled us to deal with and respond objectively and
          • Two top tips to share                               rationally to the differing challenges that kept appearing
   1   2   3